Great article in Good Housekeeping: The Never-Empty Nest
"Nobody talks about what happens when the adorable kids grow up, as Matt and Sean did, to be clumsy, awkward adults." No, sugar-coating here. A look at a family with adult children who have Fragile X, and the difficulties they face.
Fraxa.org which has long since been linked here has updated their site, so if you haven't checked it out in awhile go spend time there.
If you live anywhere near the Nashville area at the Vanderbilt Kennedy Center there is a Fragile X community forum scheduled this June 20th at 6pm to discuss their current research and how it is improving clinical care.
Comments