For the Research Volunteer Registry for research studies at the UC Davis Health System here: https://vr.ucdmc.ucdavis.edu/vr/home.vhtml
This isn't just for Fragile X studies.
To read an article about a Canadian family with three kids with Fragile X go here: http://www.calgarysun.com/2011/06/18/family-triumph
And to read about the latest "disease-modifying" treatments for Fragile X read:
Updates on New Treatments for Fragile X
and
mGluR5 antagonists fro Fragile X
and... he promises more to come so check back there.
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