I've seen a meme on Facebook about special needs kids not being weird or odd… Share if you agree! And I'm all like, are you kidding me? My Toby is SO weird. So lovably, awesomely weird.
The message I want the world to get is NOT: My kid's not weird.
The message I want the world to get is: Embrace weird. Expand the boundaries of how things are often done, to make more room for weird.
This is why it's important to me to talk, talk, talk about Fragile X.
I've been reading the book, Same Lake Different Boat by Stephanie O. Hubach, and a few women in my church have been gracious enough to read it with me and meet to talk about it over lunch. A few more women expressed interest, but they are mom's of kids with special needs, mom's who homeschool because the public school system was not meeting the special needs of their kids, and for one reason or another related to all those things, didn't make it out. Yup, that's pretty much how it goes for special needs parents.
Those of us who did read the book, who are talking about it, we are interested in how the church (our church and the church at large) can take and apply its insight. We want families and individuals touched by disability to not feel as though obstacles stand in the way between them and corporate worship. We want to remove the obstacles.
In some cases there are physical, tangible obstacles: wheel chair accessibility, required audio aids, etc.
But it sounds like the foremost obstacle is mental. It's preparing the church to make room for disruption. To grow the church into being okay with a break in the flow.
We have a program! We have an ORDER of worship! Excellent. But if you sincerely want families with special needs to join you, get ready for the hiccups in that program and that order.
Roll with the weird.